Have you ever woken up one day, kept your eyes closed, lay in your bed and thought “What will today bring?” Yep, I guess most people will have done that at some stage… I’m a little different. I wake up each day, keep my eyes closed and think “Which part of my body will not be working as soon as I move?” Some days I’m lucky and I can move my arms and legs and there is no immediate pain… most days, there is pain somewhere, but I never know where until I start to move. Some days, I cannot move and the pain is too much to bear and it's not simply just pain, I feel ILL. Sometimes getting out of bed is difficult enough… stairs, well, mostly I go down them backwards, eating is difficult when my jaw won't work or the nausea kicks in, headaches every.single.day and and and… the fatigue never ceases. It’s overwhelming, it’s life sapping. However, some days I can get up and all appears well – but during the day something always happens, some part of my body
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